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The Question That Stopped a Classroom: Why We Must Talk About Young Hearts
A young man asked me that this week at The Link School Sunderland. He asked it openly,…
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Finding Out Your Child Has CPVT: The Moment Everything Changed
But let me tell you, that relief was there but the fear, panic and devastation of what…
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PLF Featured on BBC and ITV News
On Thursday, we had the pleasure of joining Carol Malia on the BBC Look North sofa to…
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How CPVT was diagnosed in our daughter
Evie was 5 when she unexpectedly had her first seizure, there seemed to be no reason, no…
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Guest Blog: The Day you Hear the Words – Facing a New Cardiac Diagnosis
There is life before the diagnosis, and life after. When the doctor says, “Your child has a…
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Guest Blog: Learning to Cope: Moving Forward After a Cardiac Diagnosis
This stage can feel quieter, but in many ways it is harder. The adrenaline fades. The meals…
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Guest Blog: When One Child Is Diagnosed With a Heart Condition: The Sibling Experience
And quietly, often unnoticed at first, siblings begin their own journey. Siblings may not have the…
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Sharing Poppy’s Light: Promoting Heart Health Awareness in Our Schools
This week, I had the real pleasure of visiting Southmoor Academy and The Link School to meet…
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Early ICC Detection Saves Lives: Why Newborn Screening Must Change
Following recent media interest in our campaign, we’ve heard from families across the country who had never…
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Guest blog: Mental Health Challenges for Young People Living With Cardiac Health Conditions
For young people, managing a cardiac diagnosis can be especially challenging, as it intersects with critical stages…
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Guest Blog: Health Anxiety in Young People With Cardiac Conditions: When Worry About the Heart Takes Over
For children, adolescents, and young adults, this awareness is often necessary, but it can sometimes tip into…
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What We’ve Built, and Where We’re Going: A Founder’s Reflection
It was born out of love, heartbreak, and a profound sense that what our family experienced should…
