Recognising the signs
Inherited Cardiac Conditions can be silent; many children and adults look healthy and feel well. However, there are often subtle signs that a heart condition may be present. Recognising them early can save lives. This page outlines the heart condition symptoms and signs that warrant a conversation with your healthcare provider.
1. Fainting or unexplained collapse
• Fainting during exercise, excitement, or sudden fright.
• Fainting without warning, particularly in sleep or at rest.
• Any collapse that feels unusual or severe.
2. Palpitations or rapid heartbeat
• Heart racing or fluttering for no apparent reason.
• Skipped beats or irregular rhythms noticed by the child or others.
3. Seizure-like episodes
• Convulsions or shaking that may be caused by a sudden drop in heart rhythm.
• Episodes sometimes mistaken for epilepsy.
4. Chest pain or discomfort
• Chest tightness, pressure, or pain, especially during activity.
• Pain that is unusual for the child and not explained by exercise.
5. Breathlessness or fatigue
• Feeling unusually short of breath during activity.
• Fatigue that seems disproportionate to exertion.
Key points for parents
Heart condition symptoms can be subtle or rare. Many children with ICCs feel perfectly well most of the time.
Family history is critical. Even if a child shows no symptoms, a family history of SADS or heart rhythm problems may indicate risk.
Trust your instincts. If something feels unusual or off, get it checked.
What to do if you notice symptoms
1. Speak to your GP or paediatrician immediately.
2. Ask for referral to a cardiac specialist experienced in ICCs.
3. Consider family screening if there is any history of unexplained fainting, seizures, or sudden death.
Early recognition gives families knowledge, protection, and the chance to prevent tragedy. At Poppy’s Light Foundation, we are here to guide you every step of the way.
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