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Early ICC Detection Saves Lives: Why Newborn Screening Must Change
Following recent media interest in our campaign, we’ve heard from families across the country who had never…
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Guest blog: Mental Health Challenges for Young People Living With Cardiac Health Conditions
For young people, managing a cardiac diagnosis can be especially challenging, as it intersects with critical stages…
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Guest Blog: Health Anxiety in Young People With Cardiac Conditions: When Worry About the Heart Takes Over
For children, adolescents, and young adults, this awareness is often necessary, but it can sometimes tip into…
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What We’ve Built, and Where We’re Going: A Founder’s Reflection
It was born out of love, heartbreak, and a profound sense that what our family experienced should…
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A Week in the Life of a Charity Founder: January Has Started Strong
January is often a time for reflection and reset, but at Poppy’s Light Foundation, this week has…
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Sudden Arrhythmic Death Syndromes (SADS): Learning from Poppy and changing practice
Sudden Arrhythmic Death Syndromes (SADS) are inherited heart rhythm disorders that can cause sudden cardiac arrest in…
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Finding hope through awareness
While this season is not an easy time to speak about loss, it is a meaningful time…
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From heartbreak to hope: Protecting families and reaching young people
Her sudden death left us devastated, and with one urgent fear: Could this happen again? Our children…
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Let’s talk about early warning signs of an Inherited Cardiac Condition (ICC)
In my first blog, I shared the heartbreak of losing Poppy and the impact her death had…
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Understanding the genetic and molecular basis of Inherited Cardiac Conditions (ICCs) and SADS
Poppy passed away in 2024 due to undiagnosed Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), one of these ICCs….
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Poppy’s Legacy: Raising awareness of SADS and Inherited Cardiac Conditions
Poppy was young, healthy, and full of life, her sudden loss left a profound hole in our…
