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A Professional Reflection on Awareness, Missed Opportunities, and Prevention Sudden Arrhythmic Death Syndromes  (SADS) are inherited heart rhythm disorders that can cause sudden cardiac arrest in children and young people. These conditions are clinically challenging: structural heart abnormalities may be absent, symptoms may be intermittent or subtle, and early presentations often overlap with benign explanations. Despite these challenges, the consequences of missed recogniti

This reflection is shared not to alarm, but to gently widen understanding. Because when cardiac channelopathies are recognised, lives are saved.

When we lost Poppy, our world changed forever. She was bright, healthy, and full of life, the kind of young woman who lit up every room. Her sudden death left us devastated, and with one urgent fear...

ICCs are genetic disorders affecting the heart’s electrical system or structure. They can run in families and may remain silent until a severe or fatal event occurs.

Sudden Arrhythmic Death Syndrome is often the first sign of a hidden Inherited Cardiac Condition. After losing my daughter Poppy to undiagnosed CPVT, I learned how tiny genetic changes like those in RYR2, SCN5A and KCNQ1 can silently endanger healthy hearts. Through genetic testing and molecular autopsy, we found answers that now help protect our family and raise awareness to save others.

In memory of Poppy, this post explores how her legacy is driving vital awareness of Sudden Arrhythmic Death Syndrome (SADS) and inherited cardiac conditions. It explains the signs to watch for, the importance of screening and education, and how one family’s grief has sparked a movement to protect young hearts across the UK.