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Sudden Arrhythmic Death Syndrome is often the first sign of a hidden Inherited Cardiac Condition. After losing my daughter Poppy to undiagnosed CPVT, I learned how tiny genetic changes like those in RYR2, SCN5A and KCNQ1 can silently endanger healthy hearts. Through genetic testing and molecular autopsy, we found answers that now help protect our family and raise awareness to save others.

In memory of Poppy, this post explores how her legacy is driving vital awareness of Sudden Arrhythmic Death Syndrome (SADS) and inherited cardiac conditions. It explains the signs to watch for, the importance of screening and education, and how one family’s grief has sparked a movement to protect young hearts across the UK.